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Jay Risk

Jay Risk

Tetralogy of Fallot Foundation Inc., USA

Title: Long Term Effects and the Congenital Gap

Biography

Biography: Jay Risk

Abstract

‘Long Term Effects and the Congenital Gap’ is a 3 part oral presentation (video aid if allowed) beginning with a documented case study of a congenital heart patient living with Tetralogy of Fallot. Focus of Part1’s case study outlines the direct effects of enduring multiple surgical repairs which include mental, physical and collateral affects ranging from short term to lifelong issues.  The purpose is to offer cardiologists a better understanding into the plight of a lifelong heart patient not previously reviewed or considered.  Part 2’s focus is to discuss the urgency and importance of solving the present challenge a congenital heart patient faces, while transitioning from a pediatric heart patient to an adult heart patient (due to age) as it relates to the world of present medicine. Specific issues are discussed such as: a lack of patient resources, the problem of an adult congenital patient being treated by a general cardiologist, and the void that exists in care when transitioning from pediatric cardiology to adult congenital cardiology.  Part3 gives reason to why we need to grow the field of “Adult Congenital Cardiology” and all related fields…Statistics, analysis and testimonials to be provided as part of the presentation.